Latest Activity

linzidee updated their profile
May 15
linzidee is now a member of CRPS Research and Developments Community
May 15
Lisa Keesecker is now a member of CRPS Research and Developments Community
May 13
Victoria Lister shared Sandra Martineau's photo on Facebook
May 10
Victoria Lister is now a member of CRPS Research and Developments Community
May 10
Bruce Pengelly is now a member of CRPS Research and Developments Community
Apr 28
Sandra Martineau left a comment for donnajs frank
"This is spamming  Donna and it is not tollerated here, preying on sick people is how it is viewed by this site, if it has nothing to do with this website expecially if it's commercial $$ is not allowed. This is your first warning plese do…"
Apr 23
Profile IconChicken LIttle, Mrs Byrd and donnajs frank joined CRPS Research and Developments Community
Apr 19
donnajs frank updated their profile
Apr 18
Karma Couture is now a member of CRPS Research and Developments Community
Apr 15
Lisa Zuleger is now a member of CRPS Research and Developments Community
Apr 13
Profile IconJoy Thornton and mary gauss joined CRPS Research and Developments Community
Apr 1
mary gauss shared Sandra Martineau's photo on Facebook
Apr 1
Douglas Stein replied to Douglas Stein's discussion My Treatment Plan and Doctor Additions
"My doctor Dr. Valiez gives me steroid injections using something like a fluoroscope, iodine and the steroid. Amazing results after 2 treatments, feeling has returned to my left index finger about 70% pain is now minimal and the disassociation action…"
Mar 17
Sabina Walker replied to Douglas Stein's discussion My Treatment Plan and Doctor Additions
"Dear Douglas Stein, First, I am sorry you have CRPS, and I wish you speedy recovery! Second, you may be interested in knowing that your 'LRR  Limb Role Reversal' therapy sounds a lot like Edward Taub's successful CIMT…"
Mar 17
Douglas Stein joined Sandra Martineau's group
Thumbnail

Ketamine Group

A place for people who have had or are considering ketamine treatments to meet and discuss treatment options, information, and support issues related to Ketamine treatments and results.See More
Mar 15
Douglas Stein updated their profile
Mar 15
Douglas Stein posted a discussion

My Treatment Plan and Doctor Additions

I have CPRS and want to share with the community 2 doctors that have really helped me through this thing. It is so weird to me that my body would turn against me.This is not right, I have to be assertive about my treatment and take control over what is happening to me. The movement in my neck has improved, the muscle atrophy is reversing (I am gaining strength in my left arm), the electric shocking is relaxing, feeling is returning  to my left hands forefinger, the blotchy patches of rash are going away. The pain that I suffered through has diminished! It is a little struggle taking control of my arm.  Mirror box is bullshit, but LRR  Limb Role Reversal has helped immensely. LRR as I call it is what I discovered worked for me. Thinking about mirror box I came up with just telling my body that my left hand is now the dominate hand and my right hand is passive. I force my body to adjust to this and with the injections and cream I am finally seeing results. Right dominate now trying to…See More
Mar 15
Douglas Stein is now a member of CRPS Research and Developments Community
Mar 15
Sandra Martineau liked Sabina Walker's discussion "Looking for YOUR CRPS stories of recovery and hope"
Mar 8

Photos

Loading…
  • Add Photos
  • View All

Forum

My Treatment Plan and Doctor Additions

Started by Douglas Stein in Ketamine treatments, information.. Last reply by Douglas Stein Mar 17. 2 Replies

I have CPRS and want to share with the community 2 doctors that have really helped me through this thing. It is so weird to me that my body would turn against me.This is not right, I have to be…Continue

Tags: role, reversal, limb, LRR, injections

"Looking for YOUR CRPS stories of recovery and hope"

Started by Sabina Walker in Our stories and introductions Mar 8. 0 Replies

Looking for YOUR CRPS stories of recovery and hope.Posted by Sandra Martineau on December 27, 2011 Hello Sandra and the rest…Continue

Doctors we can recomend or wish to discuss.

Started by Sandra Martineau in Welcome all new members!. Last reply by Debbie Knowlton Feb 26. 5 Replies

Hi there how is your doctor situation? With CRPS I think it is important to have the advantage of knowing that your new doc has at least heard of CRPS or RSD, and it is wonderful to have the…Continue

Tags: Kelowna, pain, Canada, Comox, Naniamo

Doctors - from old FaceBook page

Started by Isy Tifft in Uncategorized. Last reply by Colleen Pisaneschi Jan 22. 3 Replies

Here are the topics concerning doctors we discussed on FaceBook.Continue

Tags: doctors

Chat

Active Conversations

Disconnected

    Disconnected

    You are disconnected from chat. Connect to join the chat.

    Suspended From Chat

    Sign up to chat on CRPS Research and Developments Community.

    Sign Up

    Notes

    Complex Regional Pain Syndrome - CRPS

    C is the colour change that can mottle our bodies,

     

    R is for the pain that rapes our bodies of life,

     

    P is the protection from the world that we have to find and

     

    S is the screaming and crying we do when we are alone.

     

    .

     

    C is for the care that we dream of receiving,

     

    U is for the understanding we wish we had,

     

    R is for the radiance we envy in others,

     

    E is for the…

    Continue

    Created by Sandra Martineau Nov 5, 2011 at 2:59am. Last updated by Sandra Martineau Nov 5, 2011.

    The robber called CRPS

    You rob,

     

    You burn,

     

    You take our breath away

     

    .

     

    You make our blood sear like hot oil in our veins,

     

    You make the skin we grew to love and know turn to hateful coverings,

     

    Our nails turn to dust and brittle,

     

    .

     

    You forcde our hair to grow too long

     

    Or not grow at all,

     

    While the pain just keeps on…

    Continue

    Created by Sandra Martineau Nov 5, 2011 at 2:00am. Last updated by Sandra Martineau Nov 5, 2011.

    Notes Home

    Welcome! To view all notes, click here. Continue

    Created by Sandra Martineau Oct 29, 2011 at 10:07pm. Last updated by Sandra Martineau Nov 2, 2011.

    McGill Pain Questionare

     McGill Pain Questionnaire



    This questionnaire measures the intensity…
    Continue

    Created by Sandra Martineau Oct 30, 2011 at 9:38pm. Last updated by Sandra Martineau Oct 30, 2011.

    Bring Awareness to Living Everyday on Fire

    Considered an invisible disease, Reflex Sympathetic Dystrophy (RSD) is a neurological pain disorder that is still undefined. Due to the lack of communication between doctors during the Civil War, symptoms, tests, and their results were slowly confirmed and recognized in the diagnosis of this disorder. With nerve injuries that couldn’t be fixed in the field, soldiers were put into government hospitals where doctors were able to observe and treat a large population with the same problem.…

    Continue

    Created by Sandra Martineau Oct 30, 2011 at 12:26am. Last updated by Sandra Martineau Oct 30, 2011.

    Top Content 

    1 McGill Pain Scale

    McGill Pain Scale

    Added by Sandra Martineau on November 29, 2011

    YouTube

    Member Map

    Donate

    SmallWorlds

    CafePress Shop

     
     
     

    ~ Become A Certified Reiki Master, Audio Cds, Reiki Certificates, Reiki Attunements.

    Click Here!

    ~~~~~~~~~~~~~~~~~~~~~

    BuyMoreSaveMore_125x125

    We are a CRPS research networking community and not meant to take the place of a doctor, contact your doctor before making medical changes.

    Blog Posts

    2 Relevant Blogs: "Living Anyway" and "Bio Wizardry"

    Posted by Isy Tifft on January 21, 2012 at 21:53 0 Comments

    I blog over at Blogspot.com and have kept a CRPS blog of one kind or another for years.

    The current one is much more sprightly than its predecessors, which were written while I was still on the downward spiral (assisted by a well-intended but fatuous stable of physicians.) I call it, "Life, CRPS & Everything:…

    Continue

    My Dark Passenger

    Posted by Lisa VanOostward on December 14, 2011 at 9:57 0 Comments

    I may be locked up for posting this, but it needs to be said, at least I feel it does.  My CRPS has a name, an identity and the only way I can see living with this is to separate it from me, the human being.  My CRPS is my Dark Passenger.  That is his name, and yes, it is a male, based on it's size, it's strength and it's complete ignorance of what it is doing to me.  So he lives within me, he is a part of me, but he is not me.  I spend my days ignoring him and my nights fighting him off. …

    Continue

    Trying to Move The Damn Wall

    Posted by Lisa VanOostward on December 1, 2011 at 11:25 1 Comment

    After week one's disastrous results I was fully prepared to ease up on the intensity of exercise I was doing.  Monday was my pool day so I went ahead and met my kinesiologist there and together we discussed my reactions to the previous week and weighed my options.  My kinesiologist told me to speak to the physiotherapist and see what she has to say.

    I think we all know what she said..........keep it up.  She feels it is my body's way of adjusting to the increase in movement and…

    Continue

    Nancy's Ketamine Experiences over the past 10 years

    Posted by Nancy Renee Cotterman on November 27, 2011 at 17:27 0 Comments

    Nancy's CRPS Blog including Ketamine Experiences

     

    The above is a link to my blog spot where I describe my experiences with Coma Ketamine, In Patient Ketamine Infusion and Out Patient Booster Infusions.

     

    Links that help support this site :)

    $15 off $50 + Free Shipping at VItamin World! No Code Needed. Cannot be combined with other coupons. Valid: 12.14.11 - 12.17.11

    Free Shipping on orders over $50. Regain your freedom. Find scooters, wheelchairs, lift chairs and more.

    Click here for $5.00 instant coupon for Coromega Omega3 Squeeze

    FREE Shipping on all orders of Traditional Holiday Photo Cards. Only at PhotoCardsDirect.com

    FromNatureWithLove.com - FromNatureWithLove.com offers a large selection of 1,750+ natural ingredients used in skin care, hair care, cosmeceutical applications, massage, aromatherapy, spa products and herbal preparations. FNWL also offers a large selection of packaging supplies, bath accessories, natural body scrubs, books and equipment.

    Events

    Videos

    • Add Videos
    • View All

    TripMama Holiday Offers

    Badge

    Loading…

    Recommended light weight foot wear :)

    About

    © 2012   Created by Sandra Martineau.

    Badges  |  Report an Issue  |  Terms of Service

    Give your child the ABCmouse.com advantage! Help your child prepare for kindergarten with online curriculum preschool-k. Click Here! confused_300x250 GelPro Banner (468x60) banner